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» »Unlabelled » Great work on Xeroderma pigmentosum goes unnoticed



Mapuvire attending one of the children she cares for

Shingirai Vambe


HARARE - A committed social worker in the capital is working hard to take good care and treat children suffering from a rare skin disease called Xeroderma pigmentosum which afflicts mainly those from poorer social backgrounds.
Xeroderma pigmentosum is a rare skin disease that has no known cure, and individuals who suffer from it need support and treatment.
Pauline Mapuvire has formed Xeroderma Pigmentosum (XP) organisation to support children with the disease which is also described as a form of skin cancer.
She said people suffering from XP must not be exposed to direct sunlight, UV light and must use sunscreen lotions.
For the past two years, she has been working for the welfare of disadvantaged children suffering from the disease so that they can feel loved and cared for.
“I started with nine children whom I took from very poor backgrounds where no one could even give them the basics of what they needed. I am happy that there are now 27 children that I am attending to and I hope I will be able to help even more.
“Usually, people do not want to associate with such people or families as they classify XP as a curse. I have however made it a point that I should give my time and whatever little resources I can get to take good care of them despite receiving no support from authorities or other organisations.
“I have tried to do a fundraising in the form of a modeling show (Miss Legacy Zimbabwe) in September 2017 but we did not manage to get enough funds,” said Mapuvire.
She said it was critical that those who see the compelling importance of the job at hand to come forward and lend a hand for the benefit of sufferers.
“The children need shelter and the type of clothing that most of them require costs 3 000 British pounds, money which is hard to raise in our economy,” she said.loca



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